tag:blogger.com,1999:blog-6214210003404319881.post599173528650604726..comments2014-07-24T14:29:22.050-04:00Comments on Nothing for Granted: When Time Stands Still.Unknownnoreply@blogger.comBlogger11125tag:blogger.com,1999:blog-6214210003404319881.post-57886475583989442292012-03-26T08:16:35.580-04:002012-03-26T08:16:35.580-04:00I just found your blog, I am 22 weeks along in my ...I just found your blog, I am 22 weeks along in my pregnancy and our little Ryleigh Ann was just diagnosed with Truncus Arteriosus last week, I have had many of the same thoughts run through my head only my tears never seem to stop – I wasn’t able to hold them in, I broke down in the specialists office and then again in the fetal cardiologist. I hate that her first moment of life will be consumed with such a horrifying ordeal. Your blog gave me hope that we just may see her smile, hear her laugh, enjoy her life, and all that it will add to ours.<br /><br />As we make our way through the emotions and prepare for her first open hearts surgery, your blog gave me a little hope that I am not alone and there is much hope that we can hold on to.Lee Ann Walkerhttps://www.blogger.com/profile/03657462655977552417noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-19786290700647881252011-02-04T20:34:39.930-05:002011-02-04T20:34:39.930-05:00Hi, Christie. While my Hailey isn't a heart ba...Hi, Christie. While my Hailey isn't a heart baby, she has severe medical problems. She was in the hospital for Christmas, and that was her tenth episode of Encephalopathy. <br /><br />I don't know the exact struggles that you will be facing with a heart baby, but I SO understand the uncertainty that's gripping you. Wondering what the future will hold for your baby and your family. I guess only time will tell.<br /><br />I know it's easier said than done, and I can't even follow my own advice at times, but try to remain positive. I've learned that dwelling on the negative or letting the fear grip you will only take from today, and you can't change tomorrow.<br /><br />You and Lukas are in my prayers!Robin Visbalhttps://www.blogger.com/profile/01834766258411403145noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-61962405216427371072011-02-03T23:51:53.324-05:002011-02-03T23:51:53.324-05:00Thank you all so much for your beautiful, kind com...Thank you all so much for your beautiful, kind comments and prayers! We appreciate them so much! I will keep you all in my prayers as well =)Christiehttps://www.blogger.com/profile/13853981605617299788noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-18850888592614728112011-02-03T22:50:55.331-05:002011-02-03T22:50:55.331-05:00I am sending lots of thoughts and prayers your way...I am sending lots of thoughts and prayers your way. As a heart mommy myself its not easy hearing those words. My beautiful little princess was my first, and to find out that my one chance at a baby and she was going to have a special heart, was HARD!! If you need to talk I am here. You can email me or you can find me on facebook(if you do that). <br />Heart hugs <br />StarProudheartmommy07https://www.blogger.com/profile/15684643568921672231noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-63030834118099312012011-02-03T22:06:41.536-05:002011-02-03T22:06:41.536-05:00Not trundle...truncus.Not trundle...truncus.The Simmons Familyhttps://www.blogger.com/profile/14206401418544523378noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-58611899501498036322011-02-03T22:05:34.979-05:002011-02-03T22:05:34.979-05:00Hello. I just wanted to tell you that I know exac...Hello. I just wanted to tell you that I know exactly how you feel. I was in your shoes not too long ago. My son was diagnosed at 22 weeks gestation with HLHS..there was no left side to his heart. It rocked our world upside down! <br /><br />Owen just turned 3! After 2 open heart surgeries and two more to go this year...our hearts have been changed and for the better! It's going to be a difficult journey, but such a blessed one. <br /><br />If you want to chat..my blog is owensheart.com. We have a pretty big facebook group called heart mamas. There are some other moms of kiddos with trundle, HLHS and every other defect on between! You are about to be a "heart mom". We love each ..support each other..and have a tie that binds. Next week is chd awareness week. <br /><br />On my sidebar you will find many links to other heart babies, but mostly single ventricles. <br /><br />My prayers are with you and i will add Lukas to my heart babies list. Owen has open heart surgery on thursday of next week. Yikes!The Simmons Familyhttps://www.blogger.com/profile/14206401418544523378noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-18705392859834274542011-02-03T21:30:42.258-05:002011-02-03T21:30:42.258-05:00Christie,
I came to your site via MckMama...pleas...Christie,<br /><br />I came to your site via MckMama...please know I'm praying for Lukas' healing and for peace and comfort for your family. Miracles do happen. And Riley is such a wonderful place for children in need of excellent care. I am passing along your story and requesting prayers from all I know. You have a beautiful family. :)<br /><br />Many prayers and much love,<br />AndiAndihttps://www.blogger.com/profile/05452957438093776903noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-28693452109330951892011-02-03T17:55:56.923-05:002011-02-03T17:55:56.923-05:00Christie, I am so sorry to learn that little Lukas...Christie, I am so sorry to learn that little Lukas heart isn't healthy. I am praying for his safe birth and that the doctors will be able to operate successfully. I came here after reading McKMama's tweet, and remember how miraculous Stellan's outcome was? There is always hope. <br /><br />Many people are thinking of you, I hope that thought helps a little bit.<br /><br />All my best,<br />Dagmar<br />Dagmar's momsenseDagmarhttps://www.blogger.com/profile/02009455086319026560noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-31713695090074483382011-02-03T17:13:11.081-05:002011-02-03T17:13:11.081-05:00You and little Lukas are in my prayers and I will ...You and little Lukas are in my prayers and I will post it on my website too!Tobi@simplyjesusministries.comhttps://www.blogger.com/profile/11740673499562042266noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-28381762948456975572011-02-03T15:11:27.222-05:002011-02-03T15:11:27.222-05:00Aww thanks. I would love that =)Aww thanks. I would love that =)Christiehttps://www.blogger.com/profile/13853981605617299788noreply@blogger.comtag:blogger.com,1999:blog-6214210003404319881.post-41196953938062599112011-02-03T14:50:11.654-05:002011-02-03T14:50:11.654-05:00Thinking of you, the boys & little Lukas daily...Thinking of you, the boys & little Lukas daily. love the blues, greens & yellows. I have been making hats out the wazoo- everything I use on my newborns I make myself. I will have to whip Lukas up a few hats. :)Autumn Stockton Photography LLChttps://www.blogger.com/profile/12487664561818958919noreply@blogger.com