|taken from my phone so I apologize for the pixelation|
|early this morning - around 2:30am when he was finally stablized|
Today, his feeds have been resumed. He was on 57mL of 30 cal fortified breastmilk. Due to the changes last evening he is only on 16mL of straight breastmilk. Barring he tolerates these feeds well today, they will bump him up to 16mL of 30 cal fortified breastmilk and work from there. They also have TPN ordered for him.
Its been a whirlwind these past two days. Our team told us that there would likely be some hiccups on the road to surgery, but he had done so well up until now I think we were a bit spoiled. Watching our son decline before we know he will get better is horrific. Its like the worst nightmare you can imagine. I watched these doctors and nurses swarm his room lastnight from around midnight to about 2:30am. And I just had to sit there and take a backseat while my son lie there. It was the worst feeling. I'm still recovering today and walking into my son's room seeing all of the equipment he is attached to now is almost more than my heart can bear. Its a big change from seeing my happy boy with just his NG tube. Now he's sedated. He moves and is reactive, but its not the same. I can't hold him. I can't cuddle him when he gets upset. I can't pat his little butt, which he loves so much. I can't even change his diaper by myself because he has so many addition tubes and wires now. Its hard for me. Its hard for this mama and it hurts so much. I just pray Wednesday comes and we get to see him start getting better. I know seeing him after surgery will be tough, but I know its forward progress. Its a step in the right direction.
So in the meantime, please pray for him. Please pray that we have no more hiccups on the road to surgery and that he makes it to Wednesday as stably as possible. Please pray there are no more scares and that there is no more hardship for this little being that I love so much. Please pray for his doctors, his nurses, and everyone who is caring for him. Thank you so much to everyone who has continued to pray for our little boy. He needs all those prayers and happy thoughts you can muster right now!
Hope you are having a happy, beautiful weekend friends. Until next time.